Tuesday, June 14, 2016

Multiple opinions...

     A friend of mine, a medical professional with a pacemaker actually, recently assured me that mine is not an isolated case, that medicine is extremely difficult and available information is often incomplete and sometimes open to interpretation even amongst trained and experienced medical professionals. This disparity could occur not just in the diagnosis, but also the uncertainty of the diagnosis.
     I think back to Dr Lyme #1's diagnosis of irreparably bad wiring - either due to genetics or cured Lyme Disease (LD). His diagnosis was based on his certain, but mistaken, belief that heart block always resolves quickly and completely with the antibiotic treatment I had taken. And though Dr Lyme #1 actively avoided direct discussion with me thereafter, in March he did discuss with my GP my continued poor health and more specifically the bullseye rash and increase in IgG results. Dr Lyme #1 made no change in diagnosis or treatment; he stuck to his diagnosis of irreparably bad wiring and no extended treatment.
     Dr Lyme #2 considered my history as Dr Lyme #1 had, including the continued poor health, EM rash and increase in IgG results. Dr Lyme #2 acknowledged that heart block due to LD, more specifically referred to as Lyme Carditis, resolves completely with antibiotics, but sometimes not so quickly - that additional treatment is necessary for some rare cases. Cases like mine. Dr Lyme #2 diagnosed tick borne disease impacting multiple systems, not just my heart. Dr Lyme #1 and Dr Lyme #2 had the same information, but made significantly different diagnoses and different recommended treatments: none vs continued antibiotics for perhaps another four weeks or so.
     By the time I had met with Dr Lyme #3, it became known that my heart block had resolved - clearly indicating LD, as nothing else presents like that. Dr Lyme #3 came to a similar diagnosis as Dr Lyme #2 - tick borne disease impacting multiple systems, but his recommended treatment was overwhelming in comparison to that of Dr Lyme #2: one type of antibiotic for perhaps another four weeks vs multiple types of antibiotics and other medications to kill germs, plus practices and remedies to clear toxins from my body - all for a much longer period.
     So, you see what I mean, the same information - test results, history and symptoms and whatever else - can be interpreted differently in terms of the diagnosis and uncertainty. That's just the way it is, but it is up to the patient to evaluate the diagnosis and uncertainty and ensure that all makes sense. If it doesn't, the patient needs to speak up and keep moving, otherwise things might not turn out well at all.

4 comments:

  1. Thank you! Your help and referral has helped Kimberly get to Jemsek! Finally we have a plan to heal! Btw I have read that marijuana helps tremendously with pain and also herxing. The oil fights the bacteria. Also infrared saunas and steam rooms raised the body temp and causes the bacteria to go dormant.
    Alex and Kimberly

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  2. Thank you! Your help and referral has helped Kimberly get to Jemsek! Finally we have a plan to heal! Btw I have read that marijuana helps tremendously with pain and also herxing. The oil fights the bacteria. Also infrared saunas and steam rooms raised the body temp and causes the bacteria to go dormant.
    Alex and Kimberly

    ReplyDelete
  3. sorry for spelling errors!!!

    ReplyDelete
  4. I am very relieved to hear that Kimberly is on the right track. So many of us have had a very long and circuitous path just to get to a working treatment plan - and that plan may change over time and take months or years to execute. I hope she finds relief and recovers completely. Thanks, Alex. --Chris

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